How I figured it out<\/strong><\/p>\n<\/div>\n\n\n\n I have Instagram to thank for figuring out that May Thurner was part of the equation for me. Katie Edmonds (Instagram<\/a>) posted an article written by Kimberly Kushner (Home)<\/a> Here is a link to that article (Venous Disorders, Pelvic Congestion Syndrome, and Endometriosis: A Connection We Need to Talk About \u2014 Heal Endo<\/a>)<\/p>\n\n\n\n In the fall of 2025, I had an occurrence in my pelvis where the pressure got so bad that I couldn’t stand without assistance and I was in so much pain (this had happened before but not this bad or for this long). I had researched the reasons for this for years but was still without answers. Shortly after this occurrence I found the article above, and the pieces just started to all fall together. I was able to have a consultation with Kimberly and reached out to my amazing Pelvic Floor Pt Michele (Align PT| Expert Pelvic Physical Therapy| Longmont, CO<\/a>) and was fortunate enough to be living about 20 minutes from an awesome vascular specialist Dr Brooke Spencer. Once I got my appointment with them, they were able to see what looked like iliac vein compression in my MRI from my excision surgery two years ago. This moment was so validating. I had been describing a sensation of feeling like there was ball in front of my spine at L5 S1 and turns out there was!<\/p>\n\n\n\n How it showed up in my body<\/strong><\/p>\n\n\n\n These were exacerbated after receiving a cardiac ablation for Wolf Parkinsons White Syndrome and the got even worse after excision surgery for stage 4 endometriosis (the excision surgery helped with Endo immensely)<\/p>\n\n\n\n Resources for vascular specialists that understand the complexity of Vascular plus EDS\/ENDO\/POTS\/MCAS<\/strong><\/p>\n\n\n\n Interventional Radiology in Denver, CO | MIPS Center<\/a><\/p>\n\n\n\n\n
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